-Medicaid Waiver Services-


 Frequently Asked Questions about Medicaid Wavier Services

Many of us have heard of and/or even share information about the “Medicaid Waiver.” While we are familiar with the basic idea of the waiver, we may not understand the process or purpose of the waiver. The “Medicaid Waiver” we often discuss is called the Family Support Services Waiver (FSSW), but there are actually other waivers available. The process of applying can be daunting for some, but offers needed assistance for many. This week’s resources will focus on the goal of learning more about the FSSW. 


FAQ:

QWhat is it?  

A:  The FSSW is a community-based, government service that is available to provide supports for individuals with autism and developmental disabilities. It is not based on income. There is a waiting list that varies in length. Currently, the average wait after application is about 8-10 months in Indiana. According to several sources, the FSSW Waiver can provide up to approximately $17,000 annually, in services and supports, which can range from supported employment to respite and includes a variety of therapies. A case manager helps guide you in the process of selecting services, once you are selected (or targeted) to receive services. 


Q:  Where do I apply?

A:  Bureau of Developmental Disability Services (BDDS) *Note:  People often call this “BEADS” for short.

     1452 Vaxter Avenue

     Clarksville, IN 47129-7721

     Phone: 1-812-283-1040


Q: How do I apply?

A:  Call BDDS at 1-812-283-1040 and request a FSSW packet to be mailed to you. You will need the individual’s address, DOB, and SS# available when you request the packet.


Q:  What does this all mean?

A:  ARC of Indiana has an informative article to help navigate this process:  https://www.arcind.org/supports-services/medicaid-waivers/


Q:  Okay. I have the packet, how do I fill this paperwork out?

A:  Here is a Video Tutorial for Applying: https://www.youtube.com/watch?v=dmqYGhWeP_Y&t=13s


Q:  I’m still stuck. Who else can help me navigate this process?

A:  IN*SOURCE (Indiana Resource Center for Families with Special Needs)

http://www.insource.org/

1-800-332-4433


ARC of Indiana

https://www.arcind.org/

1-800-382-9100


ASK (About Special Kids)

http://www.aboutspecialkids.org

1-317-257-8683


Q:  I feel alone in this journey. Are there others that understand what I’m going through?

A:  There are several local parent and support groups. You may want to call before attending, to ensure they are meeting on a given week.

REACH-IN Special Needs Family Support Groups
Every Thursday Evening

6:30-8pm

Rolling Fields Church Community Bldg.

1858 E. 8th Street Jeffersonville 47130

Weekly childcare & 2 monthly playgroups

http://myreachin.com/

Childcare Coordinator RSVP: Sheri Ray 1-502-494-6021

Lead Support Group Facilitator: Kristal Maggard 812-786-8402


A.S.K. (Autism Society of Kentuckiana)
5917 Scottsville-Navilleton
Floyds Knobs, IN 47119
Contact: Vonya Gresham 

1-812-923-1129

ronaldvonya@aol.com
http://www.ask-lou.org 


Parents of Children with Autism Support Group

Monday 6-7 pm

2623 Charlestown Road

New Albany, IN 47150

Contacts: Samantha Sharp sa.sharp@icloud.com

Dr. Josh 1.502.303.4063


Questions?  Contact your local CAIRE Autism Coordinators:

Kristi A. Riddle, OTD, MS, OTR, SCSS

Autism Coordinator/Educational Diagnostician

Sensory Integration Certified Occupational Therapist

AOTA Specialty Certified in School Systems

kriddle@gccschools.com


Patti Martin Frantz

Autism Coordinator/Educational Diagnostician

Greater Clark County Schools

pfrantz@gccschools.com   

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RESOURCES

RIGHTS & LAWS

STATE  & NAT'L LEGISLATURES

Autism Coverage Mandate



FEDERAL EDUCATION LAWS

Federal Education Laws & Legislation



INDIANA DISABILITY RIGHTS

www.IndianaDisabilityRights.org

info@IndianaDisabilityRights.org

Phone: 317.722.5555

Toll Free: 800.622.4845

Local TTY: 317.722.5563

Toll Free TTY: 800.383.1131



 INDIANA INSURANCE MANDATE

http://www.aboutspecialkids.org/training/ask-webinars/indiana-s-insurance-mandate-for-autism-what-is-it/

FAMILY LIVING & RESPITE

Barren Heights Family Retreat Center


Camp Courageous


REACH-Kids Monthly Play Group (free to participating families)

  

 

FAMILY LIVING 

& UTILITY SUPPORT PROGRAM

www.arcind.org

Assists families with utility costs, including payment for utility bills, funding to reactivate or prevent disconnection of services, deposit assistance to begin services, and funding to cover back utility debt.





 

GUARDIAN/PLANNING

GUARDIANSHIPS

Nathan B. Masingo, Attorney

224 E. Court Ave

Jeffersonville, IN 47130

(812) 288-6283

www.masingolaw.com




SPECIAL NEEDS PLANNING

Gordon Homes, Financial Advisor


As a Special Care Team Planner, Gordon will work with you and your professional advisors – your banker, accountant or financial planner, lawyer, social workers and health care providers – to review your financial picture and offer options that make sense for your situation.

Westpoint Financial Group

Email: ghomes@financialguide.com

2 Locations: Indianapolis, IN 

& Louisville, KY






FIRST STEPS

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First Steps of Southern Indiana 

is Indiana's early intervention program that provides services to infants and toddlers from birth to third birthday who have developmental delays or disabilities.   Division of Disability and Rehabilitative Services (DDRS)

877-614-0169

Email: ddrs@insource.org 

NUTRITION

NOURISHING HOPE

Food & Nutrition for ADHD, Autism, and Healthy Children

For parents who are new to autism or the science that proves autism symptoms can be dramatically improved through nutrition.   


Click on video links here

RoadMap Class

Bio-Individual Nutrition

Julie Matthews, CNC and CNE Author, Nourishing Hope for Autism  Founder: Nourishing Hope & BioIndividual Nutrition Institute 


INDIANA SUMMER CAMPS

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Complete listing of Indiana Summer Camps & Programs

Click here

RESPITE CARE

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AUTISM DIRECTORY

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The Autism Directory

EARLY SIGNS OF AUTISM

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  1. Avoids or doesn’t like eye contact
  2. Failure to respond when the child’s name is called (the child may initially be suspected to be deaf)
  3. Inability to point at objects or things of interest, or failure to demonstrate interest
  4. Generally wants to be alone
  5. Failure to understand or to acknowledge other people’s feelings, as well as their own
  6. Experiences echolalia or the tendency to repeat words and phrases uttered by other people over and over again
  7. Tends to give unrelated answers to questions asked to them
  8. Obsessive interests
  9. Loves to flap hands, spin in circles, and rock the body
  10. Gets upset by minor changes in daily activities
  11. Exhibits low to zero social skills
  12. Shows unusual reactions like over- or under-sensitivity to the sound, smell, taste, look, and the feel of various things
  13. Tends to reverse the use of pronouns and use “you” instead of “I”
  14. Detests or avoids physical contacts
  15. Demonstrates little attention to safety and greatly unaware of danger

(Source) Autism Parenting Magazine

AUTISM EXPLAINED

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Autism is a neurological condition, present from early childhood, characterized by difficulty in communicating & forming relationships with other people & in using language & abstract concepts.  Autism spectrum disorder impacts the nervous system. The range and severity of symptoms can vary widely. Common symptoms include difficulty with communication, difficulty with social interactions, obsessive interests, and repetitive behaviors. 

Early diagnosis leads to early intervention, and early intervention (specifically ABA Therapy) is key to building the brightest future for any child diagnosed on the autism spectrum.  

"Autism is what I have, not what I am." - Matthew A. Brown

Sources: https://www.google.com/#q=what+is+autism

https://www.cdc.gov/ncbddd/autism/data.html

AUTISM STATISTICS

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May 1, 2018

About 1 in 59 children has been identified with Autism Spectrum Disorder (ASD) according to estimates from CDC’s Autism and Developmental Disabilities Monitoring (ADDM) Network. Source: CDC Data & Statistics

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videos

Temple Grandin

Videos

The Unexpected Joys of Raising an Autistic Child

Emily Colson talks about the trials and triumphs she's experienced in raising her autistic son, Max. Her father, author Chuck Colson, joins the conversation to discuss the lessons they've learned from Max which underscore the sanctity of all human life.  

Click here to listen Part 1 of 2.

Click here to listen Part 2 of 2.



Understanding the Medicaid Waiver

Financing Special Needs Health Care Needs

4 Tips in Handling Sensory Overload